Wednesday, March 31, 2010

It has been a very busy week of multiple hospital visits. Ben is now officially "Off Treatment." He had his follow-up visit at the clinic at PCMC on Monday. Let let us know the always welcome news that the MRI he had done on Friday shows that things are stable in his brain and spine. Our next MRI will be in three months, and we are praying for the same good result.

We found out at his hearing test on Monday that Ben's hearing is also unchanged. We are very grateful that the last chemo treatments didn't make it worse! He is very borderline as to whether he would need a hearing aid, so we have decided to not get one for now, and get another hearing test in three months to see how he is doing.

We went up to the hospital yesterday for our monthly eye appointment. Here the news is not so good. His left eye is starting to drift up again, and his right eye is turned in, all due to the brain tumor. Our doctor said that chemotherapy does affect kids eyes in strange ways. (Sometimes the cure is almost as bad as the disease.) Ben will definitely need additional eye surgeries, one on each eye, but our doctor wants to wait a couple of months for things to stabilize, and do it then. I'll keep you posted on that one.

For our final good news, Ben is off one more medication, and gets his central line out on Monday. One more tube will soon be gone! Then he will only have his feeding tube left. Our little guy started out in the PICU with tubes everywhere (he had four chest tubes draining his lungs at one point), and now we are going to be down to one! And we no longer have to give him constant medications all day long, he is only on three now. Our guy has come a long, long way.

As always, thank you for your love, support, and prayers. We pray for blessings back on your heads!

5 comments:

  1. Our family has kept little Ben in our prayers. We are praying you continue to get good news as his little body recovers. Thanks for keeping us updated!

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  2. We are happy to hear all the good news about Ben's progress and will continue praying that all the challenges ahead will turn out for the best. Have a very happy and blessed Easter! We love you!

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  3. I'm all smiles while I thank God for Ben's healing. We will keep praying for the journey ahead and look forward to seeing your wonderful family often in the years ahead at HopeKids events!

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  4. I check in on how Ben is doing-our Thomas the Train quilt boy.
    It's a thrill that he continues to make mostly progress! Tell him the quilt makers say HI!

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  5. Jacob and our family have never prayed so diligently and so long for someone before. Thank you for the opportunity to develop a testimony of how prayer really works. We love you. So glad to hear the good news.

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