Friday, January 30, 2009

Thursday & Friday

I'm sorry I didn't get the blog updated yesterday.  It was a very busy day.  Little Buddy often has an almost constant stream of nurses, doctors, therapists, social workers, etc, in and out of his room. Silly me, I thought I would get bored being in a hospital room all day!

Little Buddy continues to improve a little bit each day.  The improvements at this point are true baby steps.  A smile here, a finger movement there.  He still loves music therapy and is even starting to "sing" by making little noises.  He wants so badly to talk!  We can see his tongue moving and his brain trying so hard to remember how to get the words to come out.  One thing he does remember how to do is laugh, and everyone works very hard to get him to do it!

Little Buddy is going into surgery today to have a more permanent IV (PICC line) put in for his chemotherapy.  It is a fairly easy and routine procedure, so we don't anticipate any problems.  He will also have a spinal tap at the same time to see if there are any cancer cells in his spinal fluid, so they know how agressively to treat him.  Then he will probably start his radiation therapy with the Huntsman Cancer Institute in a week and a half or so.  The side effects, both short and long term, aren't much fun, but we are grateful that the therapy is there because his chances of survival without it aren't very high.  So, given the alternative, it's a very easy decision to make.  We hope that better and more effective cures for cancer are developed soon, so that other children won't have to go through what the kids now have to.  But again, we are very grateful that the cures are there, and with both raditation and chemotherapy, Little Buddy has very good chances for a long and happy life.

Wednesday, January 28, 2009

Wednesday Morning

This morning there are smiles all around!  Little Buddy was added to the music therapy schedule today and he LOVED it!!!  They came and did some sensory integration therapy with different musical instruments.  They sang songs, had him track the sounds with bells (meaning they would shake some bells by his ear until he turned his head in the direction of the bells) , helped him shake some maracas, and ran another instument up and down his left arm teach his brain where his arm was and to try to get him to start using it again.  Little Buddy smiled several times during the music session.  That was wonderful to see!  As the music therapist was leaving she told Little Buddy, "I can see that you are going to become one of my favorite patients!"  He has really won over a lot of hearts around here already.  But is that really any surprise? :)

Sweet Boy!

Posted by Picasa

Me, my tubes, and Bear

Posted by Picasa

First time on Mommy's lap :)

Posted by Picasa

A visit from the cousins

Posted by Picasa

Out of the ICU

Posted by Picasa