Wednesday, March 11, 2009
Monday, March 2, 2009
Hello All,
First of all: One of our friends (no names on the blog... :)) offered to "send some emails around" to gather some $ to help us pay for his bath chair and prescriptions. We received some of it Friday. We are overwhelmed and touched at your generosity and desire to help us. Words can't describe how grateful we are. Please accept our deepest appreciation, and may the Lord bless you all for your sacrifice in our behalf. He has blessed us by extending the gift of friends like you to us. Thank you!
Next:
This last weekend has been very eventful, but with the wrong kind of events...
Radiation is starting to get to LB. He is more nauseated (he threw up 8 or 10 times on Saturday).
Saturday at 11PM we called the on call oncologist (try to say that 10 times fast: "call the on call oncologist": it sounds funny), who sent us to the ER.
I drove LB to PCMC's ER, where they performed all kinds of studies. As a doctor put it: when a neurological surgery patient starts throwing up, we get worried. They kept us in the ER for a couple of hours and then admitted us to the hospital: the oncologist on call wanted to keep him in observation to be sure everything is fine: we finally fell asleep at 3AM or so. (Another night on the couch... :))
The good news: his brain looks OK. His brain ventricles are normal size. (Funny moment: while looking to LB's MRI, I asked the doctor: "This gaping, cavernous hole here at the back of his head: is that a ventricle?" The doc answered: "No, that's where his tumor used to be. It's now filled with liquid, but eventually the brain might reclaim some of the vacated real estate" Ha!)
The other good news is that his feeding tube is very much in place: it's well into his jejunum, so all the pulling and pushing has not affected that. In fact, it was so deeply in that they pulled it back a little! (Good because then we got sure he didn't have any loops in his nose or anywhere else).
They did some other studies and concluded that LB is throwing up because of the radiation. Which is expected but not accepted or settled for. The oncologist mentioned that the fact that we expected him to be nauseated doesn't mean we can't work to make it better. So, she prescribed a different lineup of drugs to see if that makes it better. We'll see.
So, he's good. His emotions are a bit raw, but that's because of lack of sleep + benadryl + nausea: temporary conditions.
He's now entering his Week 3 of 6 of radiation, so Wednesday we'll be in the middle of his treatment.
Those are all the news for now. Again, thank you all for your prayers and sacrifice on our behalf!
First of all: One of our friends (no names on the blog... :)) offered to "send some emails around" to gather some $ to help us pay for his bath chair and prescriptions. We received some of it Friday. We are overwhelmed and touched at your generosity and desire to help us. Words can't describe how grateful we are. Please accept our deepest appreciation, and may the Lord bless you all for your sacrifice in our behalf. He has blessed us by extending the gift of friends like you to us. Thank you!
Next:
This last weekend has been very eventful, but with the wrong kind of events...
Radiation is starting to get to LB. He is more nauseated (he threw up 8 or 10 times on Saturday).
Saturday at 11PM we called the on call oncologist (try to say that 10 times fast: "call the on call oncologist": it sounds funny), who sent us to the ER.
I drove LB to PCMC's ER, where they performed all kinds of studies. As a doctor put it: when a neurological surgery patient starts throwing up, we get worried. They kept us in the ER for a couple of hours and then admitted us to the hospital: the oncologist on call wanted to keep him in observation to be sure everything is fine: we finally fell asleep at 3AM or so. (Another night on the couch... :))
The good news: his brain looks OK. His brain ventricles are normal size. (Funny moment: while looking to LB's MRI, I asked the doctor: "This gaping, cavernous hole here at the back of his head: is that a ventricle?" The doc answered: "No, that's where his tumor used to be. It's now filled with liquid, but eventually the brain might reclaim some of the vacated real estate" Ha!)
The other good news is that his feeding tube is very much in place: it's well into his jejunum, so all the pulling and pushing has not affected that. In fact, it was so deeply in that they pulled it back a little! (Good because then we got sure he didn't have any loops in his nose or anywhere else).
They did some other studies and concluded that LB is throwing up because of the radiation. Which is expected but not accepted or settled for. The oncologist mentioned that the fact that we expected him to be nauseated doesn't mean we can't work to make it better. So, she prescribed a different lineup of drugs to see if that makes it better. We'll see.
So, he's good. His emotions are a bit raw, but that's because of lack of sleep + benadryl + nausea: temporary conditions.
He's now entering his Week 3 of 6 of radiation, so Wednesday we'll be in the middle of his treatment.
Those are all the news for now. Again, thank you all for your prayers and sacrifice on our behalf!
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